Disability Exchange

Listing 11.02 in 2026: How SSA Evaluates Epilepsy, the Once-a-Month and Once-a-Week Seizure Frequency Rules, the 3-Month Observation Window, and the Adherence-to-Treatment Standard That Wins at Step 3

By Anthony Albert, Benefits Research Director · Updated June 13, 2026 · 14 min read

Epilepsy claims fail more often than they should, and almost always for the same reasons. Seizure logs aren't kept. Medication compliance isn't documented. The seizure-type description is missing. The claimant counts seizures the wrong way, and the adjudicator counts a different way.

The rules under Listing 11.02 are tight but predictable. If your seizure history, your nephrologist (we mean neurologist) notes, and your medication records match the right frequency thresholds, this is one of the most winnable listings in the entire Blue Book. If they don't, you get denied even when your epilepsy is obviously disabling.

This guide walks through all four paths under 11.02, the counting rules under 11.00H4, the adherence standard under 11.00C, and what your neurologist needs to write down for SSA to grant your claim.

The four paths under 11.02

Listing 11.02 reads: "Epilepsy, documented by a detailed description of a typical seizure and characterized by A, B, C, or D." You only need to meet one path.

PathSeizure typeFrequencyObservation periodExtra requirement
11.02AGeneralized tonic-clonicAt least once a month3 consecutive monthsAdherence to prescribed treatment
11.02BDyscognitiveAt least once a week3 consecutive monthsAdherence to prescribed treatment
11.02CGeneralized tonic-clonicAt least once every 2 months4 consecutive monthsAdherence + marked limitation in 1 of 5 functional areas
11.02DDyscognitiveAt least once every 2 weeks3 consecutive monthsAdherence + marked limitation in 1 of 5 functional areas

Paths A and B are the pure-frequency wins. Paths C and D let you qualify with a lower seizure count if you also have a marked limitation in physical functioning, understanding/remembering/applying information, interacting with others, concentrating/persisting/maintaining pace, or adapting/managing oneself.

What "generalized tonic-clonic" means

Per 11.00H1a, generalized tonic-clonic seizures are characterized by:

This is what most people picture when they hear "seizure." Older terminology is "grand mal."

What "dyscognitive" means

Per 11.00H1b, dyscognitive seizures (formerly called complex partial) involve:

If a dyscognitive seizure progresses into a generalized tonic-clonic, SSA counts it as one tonic-clonic event under 11.00H4c.

The adherence-to-treatment standard under 11.00C

This is what kills more 11.02 claims than any other rule. Per 11.00C, "despite adherence to prescribed treatment" means you have taken medication or followed other treatment procedures as prescribed by a physician for three consecutive months and your impairment continues to meet the other listing requirements despite that treatment.

In practical terms: if you've only been on lamotrigine, levetiracetam, valproate, oxcarbazepine, or any other anti-seizure med for 2 months, your seizures don't count yet. You have to hit the 3-month adherence floor before the seizure clock starts.

What "good reason" for non-adherence looks like

Per 11.00H4e, SSA does not count seizures during periods when you weren't following prescribed treatment without good reason. But SSA recognizes good reasons, including:

SSA cross-references 20 CFR 404.1530(c) and 416.930(c) for the good-cause framework. This is the same framework that applies to SSR 18-3p failure-to-follow-treatment denials.

How SSA counts seizures under 11.00H4

The counting rules are mechanical. Get them wrong and your claim drops a path:

  1. The clock doesn't start until one month after you began prescribed treatment. If you started keppra on January 15, the earliest day SSA will count is February 15.
  2. Multiple seizures in a 24-hour period count as one seizure. If you have three tonic-clonics in one afternoon, that's still just one for purposes of the monthly count.
  3. Status epilepticus counts as one seizure. Even if a continuous series of seizures lasts 4 hours without return to consciousness, it's one event for counting.
  4. A dyscognitive that progresses into a tonic-clonic counts as one tonic-clonic. Not two events. Not a dyscognitive plus a tonic-clonic.
  5. Seizures during non-adherence without good reason don't count.
  6. Psychogenic non-epileptic seizures and pseudoseizures don't count. Those are evaluated under the mental disorders body system 12.00 (which we covered in our mental health listings deep-dive).

The detailed seizure description requirement

Per 11.00H2, SSA requires at least one detailed description of your seizures from someone, preferably a medical professional, who has actually observed at least one of your typical seizures. If you have more than one type, you need a description of each type.

This trips up a lot of claimants. Your own description of a tonic-clonic is helpful but not enough by itself, because you were unconscious during the event. The descriptive narrative has to come from a witness: a paramedic, an ER doctor, a spouse who has watched it happen, or a co-worker. If you live alone and your only seizures happen in your sleep, an EEG-confirmed event or a video EEG capture from a neurology clinic admission can serve.

What SSA doesn't require

Per 11.00H3 and 11.00H5, SSA does not require:

If those results are in your medical records, SSA will look at them. But missing serum levels or a normal EEG is not by itself a reason to deny. Many people with documented seizures have entirely normal EEGs between events.

The paragraph C and D marked limitation paths

If your seizure frequency is too low to meet 11.02A or B but you still have significant disability, you can win under 11.02C or D by combining a lower seizure rate with a marked limitation in one functional area.

The five functional areas (11.00G3)

AreaExamples of marked limitation
Physical functioningInability to sustain standing/walking, balance impairment, fatigue from postictal recovery lasting days, falls causing repeated injury
Understanding, remembering, or applying informationPostictal confusion lasting hours, memory loss for events, inability to follow multi-step instructions
Interacting with othersWithdrawal from social situations due to seizure fear, embarrassment from incontinence or post-seizure behavior, irritability
Concentrating, persisting, or maintaining paceInability to sustain attention, off-task time from auras, cognitive slowing from anti-epileptic drugs (levetiracetam mood and cognitive effects, topiramate "Dopamax")
Adapting or managing oneselfInability to plan around seizure risk, dependence on others for transport, medication management failures

"Marked" means serious limitation: more than moderate but less than extreme. It must interfere seriously with your ability to function independently, appropriately, effectively, and on a sustained basis. SSA uses the same paragraph B framework as the mental disorder listings under 12.00.

Not sure if your seizure history meets 11.02?
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Worked example 1: California / 11.02A / tonic-clonic monthly

Tyrell, 34, Sacramento, CA. Diagnosed with idiopathic generalized epilepsy at age 19. Currently on lamotrigine 200 mg twice daily and levetiracetam 1500 mg twice daily. Has been on this exact regimen since November 2025 (7 months adherent). Has been working as a forklift operator until the last seizure in February 2026 caused a workplace incident that ended his employment.

Seizure log from neurologist (December 2025 through May 2026):

11.02A analysis:

11.02A met. Step 3 medical allowance.

Outcome: Initial DDS allowance under Listing 11.02A. Tyrell receives full SSDI benefits with onset date set at February 4, 2026 (the workplace seizure that ended employment and established 12-month durational expectation). See California state pages for state-specific provider rules.

Worked example 2: Texas / 11.02D / dyscognitive plus marked CPP limitation

Sandra, 41, San Antonio, TX. Temporal lobe epilepsy diagnosed at age 27 after years of "spells." On oxcarbazepine 600 mg twice daily and clobazam 10 mg at bedtime since August 2025 (10 months adherent). Has tried five other anti-seizure meds in the past, with side effects ranging from suicidal ideation (levetiracetam) to severe cognitive slowing (topiramate).

Seizure log (October 2025 through May 2026, witnessed by husband and documented by neurologist):

11.02B analysis: Once a week for 3 consecutive months. Sandra's average is about once every 2 weeks. 11.02B fails.

11.02D analysis:

11.02D met. Step 3 medical allowance.

Outcome: Initial DDS allowance under Listing 11.02D. The CPP marked limitation makes up for the lower seizure frequency.

What if your seizures are pseudoseizures or PNES

Per 11.00H1 and 11.00H4f, psychogenic non-epileptic seizures (PNES) and pseudoseizures are not evaluated under 11.02. They go under 12.00 mental disorders, typically as somatic symptom disorder (12.07) or conversion disorder.

This sounds bad but it isn't necessarily a loss. PNES can absolutely be disabling under 12.07 if you can show marked limitations in the paragraph B mental functional areas. The path is different but the outcome can be the same.

A subset of patients have both. Per the SSA guidance, SSA evaluates the epileptic seizures under 11.02 and the PNES under 12.00 in parallel. The combination often pushes a borderline claim across the line.

What if you don't meet any 11.02 path

You go to Steps 4 and 5. Per 20 CFR 404.1545, SSA assesses your residual functional capacity. For epilepsy that doesn't meet 11.02, the RFC restrictions that win cases include:

Most past relevant work involving driving, machinery, manufacturing, construction, or healthcare gets eliminated at Step 4. At Step 5, when the vocational expert testifies, the off-task and absence restrictions usually eliminate all competitive work. We covered the function-by-function RFC mechanics in our SSR 96-8p RFC assessment article.

Other 11.00 listings to know

ListingDisorder
11.04Vascular insult to the brain (stroke)
11.06Parkinsonian syndrome
11.08Spinal cord disorders
11.09Multiple sclerosis
11.10Amyotrophic lateral sclerosis (compassionate allowance, see CAL article)
11.12Myasthenia gravis
11.14Peripheral neuropathy
11.17Neurodegenerative disorders of the central nervous system
11.18Traumatic brain injury

If you have a combination of epilepsy plus another 11.00 condition, you can stack toward medical equivalence under 20 CFR 404.1526, which we walked through in our medical equivalence article.

How to put a 11.02 claim together

  1. Start a written seizure log immediately. Date, time, duration, witness, what happened, post-event recovery.
  2. Get a detailed description of at least one typical seizure into the medical record from a witness (spouse, paramedic, ER physician, neurology clinic staff).
  3. Maintain medication adherence for at least 3 consecutive months before relying on the listing.
  4. Get your neurologist to write a treatment summary that lists every anti-seizure med you've tried, the dates, the side effects, and the current regimen.
  5. Pull all ER and hospital records for seizure-related visits in the last 12 to 18 months.
  6. If your seizure frequency is too low for 11.02A or B, get a neuropsych eval to document a marked limitation in one functional area for 11.02C or D.
  7. If you have PNES along with epilepsy, get a mental health evaluation that addresses 12.07 in parallel.
  8. File the SSDI application online at SSA.gov or by phone at 1-800-772-1213.
If your seizures are uncontrolled despite medication, you can probably qualify.
The frequency thresholds aren't extreme. The paperwork is what wins or loses the claim. Let us check yours.
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Frequently asked questions

How often do I need to have seizures to qualify under 11.02?

For tonic-clonic seizures under 11.02A, at least once a month for 3 consecutive months. For dyscognitive seizures under 11.02B, at least once a week for 3 consecutive months. Lower thresholds apply under 11.02C and 11.02D when paired with a marked functional limitation.

Do my seizures count if I'm not taking my medication?

Generally no. Per 11.00C and 11.00H4d, SSA counts seizures that happen despite adherence to prescribed treatment. Non-adherence without good reason removes those seizures from the count. Good reasons include unaffordability without free community resources, severe side effects, or other physical or mental limitations.

What is the difference between tonic-clonic and dyscognitive seizures?

Tonic-clonic seizures involve loss of consciousness, muscle stiffening (tonic phase), then convulsions (clonic phase). Dyscognitive seizures involve altered consciousness without convulsions, with automatisms such as lip smacking, chewing, or staring.

Do I need an EEG to qualify?

No. Per 11.00H5, SSA does not require EEG results and will not purchase them. SSA does require a detailed description of a typical seizure from a witness, preferably a medical professional.

Do multiple seizures in one day count as multiple events?

No. Per 11.00H4a, multiple seizures in a 24-hour period count as one seizure. Status epilepticus (a continuous series without return to consciousness) also counts as one event.

Do psychogenic seizures count under 11.02?

No. Psychogenic non-epileptic seizures (PNES) and pseudoseizures are evaluated under the mental disorders body system 12.00, typically as somatic symptom disorder under 12.07.

How long do I have to be on the same medication before SSA counts my seizures?

Three consecutive months. Per 11.00C, the "despite adherence to prescribed treatment" rule requires you to have taken the medication or followed treatment procedures as prescribed for at least three consecutive months.

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